TIO community groups and networks
Connect with others in the TIO community. Even though TIO may be rare, you’re not alone. The groups listed below provide support and education for people living with TIO.
National Organization for Rare Disorders (NORD)
NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
Global Genes
Global Genes is a rare disease patient advocacy organization that works to build awareness, educate the global community, and provide connections and resources.
This is a selective list and does not include every organization, service, or online resource available. The links provided lead to third-party websites that are not operated, reviewed, or endorsed by Kyowa Kirin.
See what CRYSVITA can do in TIO