Here’s what will happen once you’ve been approved to start CRYSVITA
Your specialty pharmacy will work with you to schedule a time for your or your child’s medication to be delivered. It's important to pick up or accept the delivery on time and refrigerate it properly.
NOTE: You must keep CRYSVITA vials in their original carton and store them in the refrigerator until it’s time to use them.
Starting CRYSVITA may take time, but we’re here to help!
We know you’ll be ready to start treating your or your child’s TIO once you’ve been prescribed CRYSVITA. Waiting can be frustrating, but Kyowa Kirin is here to support you as you get started. Reach out to your Case Manager with questions about your or your child’s first dose. They can explain how to work with the specialty pharmacy and treatment site to set up appointments.
Don’t delay your or your child’s first dose of CRYSVITA
Remember, CRYSVITA must be administered by a healthcare professional. Your starting dose is unique to you because it is based on your weight.
Set up your or your child's injection appointment promptly when you receive the medication.
If you or your child miss a dose, take the next prescribed dose of CRYSVITA as soon as possible. To avoid missed doses, CRYSVITA may be administered up to 3 days before or after the scheduled treatment date.
Proper storage and handling of CRYSVITA
Once you have your medication at home, follow these instructions for storing and handling CRYSVITA:
- CRYSVITA vials must be kept refrigerated at 36ºF to 46ºF (2ºC to 8ºC) in the original carton until it’s time to use them. Keep the CRYSVITA vial in the original carton to protect it from light until time of use
- Do not freeze or shake CRYSVITA
- Do not use CRYSVITA after the expiration date stamped on the carton
- CRYSVITA vials are single dose only. Any unused product should be discarded
If you have any questions about the storage and handling of CRYSVITA, contact your specialty pharmacy.
Kyowa Kirin Cares is committed to helping you or your child stay on CRYSVITA throughout the treatment journey
The Kyowa Kirin Cares Case Manager can help you figure out coverage for life changes, like when switching doctors or insurance providers.
Be sure to reach out to the Kyowa Kirin Cares Case Manager when facing changes that might cause an interruption in CRYSVITA treatment.
Call 833-KK-CARES (833-552-2737) Monday through Friday, 8 AM to 8 PM (ET), or visit Kyowa Kirin Cares to learn more.
Kyowa Kirin Cares Case Managers are only available to patients prescribed certain Kyowa Kirin products. They are not part of your treatment team and do not provide medical advice, nursing, or case management services. Patients should always consult their healthcare provider regarding medical decisions or treatment.
Access helpful resources to support the CRYSVITA
treatment journey for TIO
