CRYSVITA patient resources
Explore the following resources to learn more about CRYSVITA and how it can help you manage your XLH.
Brochure for adults with XLH
This helpful brochure is for adults with XLH who want to learn more about how CRYSVITA treats XLH.
CRYSVITA doctor discussion guide for adults
Use this doctor discussion guide to help you prepare for your visit. That way, you can have a better conversation about whether CRYSVITA is right for you.
CRYSVITA doctor discussion guide for caregivers
Use this doctor discussion guide to help you prepare for your child’s visit. That way, you can have a better conversation about whether CRYSVITA is right for your child.
Join us at educational events for patients and caregivers
Join us at an event to learn more about CRYSVITA for XLH. When you do, you will hear from an XLH specialist and a patient or caregiver about their experience with XLH. You’ll also have a chance to connect with others in the XLH community.
Find an event near you.
Connect with others in the XLH community
Even though XLH may be rare, you’re not alone. The groups listed below provide support and education for people living with XLH.
Kyowa Kirin is a proud sponsor of The XLH Network, NORD, and their goals.
The XLH Network, a 501(c)(3) nonprofit organization, seeks to connect people around the world who are affected by or interested in learning more about XLH. The XLH Network connects affected individuals, families, and medical professionals.
NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.
Explore more resources just for you
Learn more about CRYSVITA, connect with a support community, and receive invites to important educational events.